Receiving a dementia diagnosis can be scary. Learning more about the condition can reduce anxiety and help you feel more in control. While Alzheimer’s changes life, there are simple steps you can take to stay informed and empowered.
This article explains dementia as a diagnosis and offers a practical list of tasks to consider when you’re wondering, “Where do I go from here?”
Coping with Emotions After a Dementia Diagnosis
A dementia diagnosis often brings a mix of emotions. You may feel anger, sadness, relief, or denial. Here are common reactions and how to cope with them:
– Denial: New information can feel overwhelming. It’s okay to seek a second medical opinion if you’re struggling to accept the diagnosis.
– Relief: Having an explanation for changes in mood or memory can bring clarity and a sense of direction.
– Fear: Worry about the future and a loss of trust in yourself or others is common.
– Anger: Feeling frustrated or unfairly treated is natural after a life-changing diagnosis.
– Sorrow: Grief and isolation can come from the many losses a diagnosis brings.
No matter how you feel, it’s important to acknowledge those emotions and get support. Try these steps to build an emotional care plan:
– Keep a journal to track feelings and reduce stress.
– Talk with close friends or family about how they can help—whether that’s daily check-ins, coming to appointments with you, or spending time doing enjoyable activities.
– Join a support group for people with dementia. Many groups meet online and some meet in person. You can find lists of services for the United States and the United Kingdom through reputable organizations and local health services.
– Stay involved in hobbies and activities you enjoy unless your doctor advises otherwise. Staying active helps you feel connected and purposeful.
Learn About Your Diagnosis
Dementia carries stigma and many misconceptions. Learning about the condition can help you make better decisions about care and reduce fear.
The CDC notes that stigma can cause people to delay medical care and make it harder for families to accept a diagnosis. The Alzheimer’s Association suggests ways to fight stigma:
– Talk openly about your diagnosis.
– Share accurate, clear information.
– Accept support from community groups, friends, and family.
– Treat the diagnosis as an opportunity to learn.
– Consider joining research studies and advocating for more support and research.
Plan for Your Future
Thinking about the future can be unsettling, but planning ahead brings peace of mind. Consider these steps:
– Address legal, financial, and medical planning. Resources are available on the Alzheimer’s Association website and other trusted sites.
– Consult a lawyer to create or update a will and to set up advance directives or a living will.
– Explore long-term care and how to pay for it. Options include in-home dementia care, assisted living, and other community services.
– Check your insurance coverage for medications and ongoing medical needs.
– Look into transportation and other local programs that help people living with dementia.
Summary
A dementia diagnosis can cause worry and uncertainty, but planning and the right support can make life more manageable. Key steps to consider now:
– Get emotional support after a diagnosis.
– Stay engaged in activities you enjoy.
– Speak openly to reduce stigma in your community.
– Consult a lawyer about wills and advance directives.
– Research long-term care options in your area, including transportation, housing, and medical services.
A dementia diagnosis changes life, but it doesn’t end it. You’re not alone.
Author Bio
Kevin Yancul writes about science, health, and education. He also enjoys photography, which inspires his writing.